Consumers and Community
The Ryan White program is dedicated to providing the best care to people living with HIV/AIDS (PLWHA). This website has lots of resources to help health care professionals do their best jobs. For you, the consumer, the Ryan White program relies on your involvement in planning councils, advisory boards, and peer programs. The consumer perspective helps to keep this program on the right track.
But the most important role for you is to take care of your health. This means keeping appointments, taking medications, and asking for help and support from friends, family, and professionals like physicians, nurses, case managers and counselors.
Staying in care
- Consumers should work with their trusted HIV/AIDS care team to learn about health insurance coverage options under the Affordable Care Act. Learn more about health care reform and enrollment in new coverage options.
- The Partners in+care campaign is a program that asks consumers to take a pledge to stay in care. We know that people who stay connected to their clinics and take their medications are healthier over time, and we want you to be healthy.
Topics for consumers
- Patient Education Materials - links to some online libraries explanations of HIV treatments and related conditions.
- Consumer Advisory Boards - how to set up and improve a consumer advisory board.
- Peer Programs - train patients and community members to support other patients.
- Consumer Involvement - information on ways for consumers to engage in Ryan White planning and in care teams.
- Quality Management - HRSA's standards and tools and resources to measure and improve performance.
Guidelines and Manuals
HRSA HIV/AIDS BureauJanuary 2005
Materials to help programs develop strategies to employ Ryan White consumers/people living with HIV/AIDS.
Webinars and Training
HRSA HIV/AIDS BureauNovember 2012
HRSA HIV/AIDS BureauNovember 1996
You Make the Difference is an orientation to Ryan White Planning Councils for prospective new members. The video describes the Planning Council's role in assessing needs and making decisions about funding of HIV/AIDS services for metropolitan areas with the highest number of HIV/AIDS cases.
Tools and Job Aids
HRSA HIV/AIDS BureauJanuary 2011
Methods that involve persons living with HIV/AIDS (PLWHA) to help link other PLWHA into primary medical care and other needed services.
HRSA HIV/AIDS BureauAugust 2007
Tools for use in a program whereby peer advocates work in a multidisciplinary team to engage people living with HIV/AIDS in care. Part I (Supervisor's Guide) and Part II (Peer Advocate Toolkit).
U.S. Department of Health and Human ServicesAugust 2014
AIDSinfo is the official home to all U.S. HIV-related treatment guidelines. The site also includes a HIV/AIDS health topics database and fact sheets on FDA-approved and investigational HIV/AIDS-related drugs, educational materials for consumers and providers, and a clinical trials database.