USCA 2014: Day Three

USCA 2014: Day Three

October 4, 2014
NYS End AIDS Session

Energy to End HIV/AIDS

Early, nearly pre-coffee, in a very large ballroom, a group of people from New York State presented a birds-eye view of their state’s plan to end HIV/AIDS in New York. The end HIV/AIDS plan, rolled out early summer 2014, received New York Times coverage and arrived at USCA 2014 as a potential model for other states.  

What is this plan? Ambitious. Developed with ample community input, according to panelist Mark Harrington, who highlighted five components of the plan. And driven by the same vision that AIDS advocates of the 1980s possessed, said session presenter Charles King of Housing Works, a reminder of their triumph in the days of “the smell of wasting syndrome." Added King: “We stand at this singular moment of opportunity that is going to pass.... We are at this tipping point with the epidemic. We either bring it to the end or it becomes this smoldering condition" that is always there among the marginalized and poor.

The New York State grand plan to end HIV/AIDS is a state-level effort to operationalize the National HIV/AIDS Strategy, informed by the HIV/AIDS Continuum of Care. Ryan White Part A planning bodies will recognize the inclusive, science-driven approach that has been a backbone of the Ryan White community since the 1990s. 

Jane FoxHRSA’s SPNS Patient Navigators & Medical Homes

Tomorrow's Ryan White network approach is being formed now in the SPNS Building a Medical Home Initiative, where agencies are evaluating innovative approaches to create a network of services for people living with HIV/AIDS who are multiply diagnosed and homeless. There are nine demonstration sites, under the direction of an evaluation center at Boston University under the direction of Jane Fox working in collaboration with HRSA HIV/AIDS Bureau staff.  

In this morning session, Building Housing Partnerships to Improve Housing Stability and Increase Health Outcomes, Fox explained that projects are exploring ways to “keep people in housing and a state of physical and mental health—and appease the landlord. It’s a bit of a dance.”

TimBelow is a selection of ideas being used by SPNS patient navigators, shared with a full room of early risers.

Among them: Timothy Gillon (pictured), a San Diego resident and one of the dozens of volunteers helping out at USCA 2014 with directions, registration, room monitoring and other essential tasks to a major national event.

  • Train navigators in, for example, motivational interviewing and trauma informed excellence training.
  • Advocate in person with medical providers to complete disability paperwork needed for housing programs.
  • Give clients pre-paid cell phones with medical appointments and medication reminders already plugged in, and deactivate or don’t upload new minutes when clients lose or sell their cells.
  • Provide clients with pre-packaged food, food vouchers as some clients are so hungry they cannot focus during the care encounter.
  • Establish a contract with an extended stay motel—a specific site that is prepared to deal with issues like accommodating clients who have pets and don’t want to secure housing that bans their only companions.
  • Convince landlords to rent to high need clients.

What works best will be examined in the SPNS evaluation framework for release in the coming years. Download the full session slides here.

See how HRSA/HAB's IHIP: Integrating HIV Innovative Practices is taking SPNS innovations and turning them into practice.  

retentionMore on Retention, Navigation, Case Management, Eligibility and Documentation

Lessons learned in care retention were shared in the session Effective Retention Strategies for HIV Case Managers and Patient Navigators, by a project called HIV Care Collaborative Partners. Elements of retention models (e.g., manageable case loads, address treatment fatigue), eligibility determinations and documentation processes were some of the highlights in this session. See the HIV Care Collaborative website for more.  

Access resources on Engagement in Care, including patient navigation, peer workers, and more.