Supporting HIV care through education and innovation

Topic: Patient Education

Ideally, patients are co-equal partners in their care. The Ryan White HIV/AIDS Program helps patients take on this responsibility by educating patients about the complexities of HIV/AIDS care and by training the clinic team to work with their patients in a collaborative manner.

Toolkits

Training resources

  • AETC NRC Logo
    AETC National Resource Center
    January 2014

    Clinical education/training resources and patient education materials from the HRSA AETC network.

  • screen image of the initial page of the training modules
    HRSA HIV/AIDS Bureau
    January 2008
    These online training modules were developed to prepare healthcare providers to support the involvement of consumers in research. Each module is narrated, with video and resources.

Websites

Factsheets

Webcasts

Factsheets

  • AIDSInfoNet
    New Mexico AETC and International Association of Providers of AIDS Care (IAPAC), January 2012

    AIDS InfoNet provides reliable, non-technical HIV/AIDS treatment information in English, Spanish, and other languages. The primary audience for InfoNet materials includes people living with HIV and their caregivers, especially nurses and other first-line treatment providers.

Tools

  • Oregon Health Authority
    Oregon Health Authority, October 2012

    Series of care plan forms to assess clients in terms of intake, assessment, and care. Forms include: intake, eligibility determination, residency verification, screening for care and psychological services, client rights and responsibilities, nursing assessment, and a care plan.

  • Iowa Department of Public Health, September 2011
    Tool for clients to use in recording weekly goals as part of their overall care plan to outline goals and objectives for HIV/AIDS care.
  • Iowa Department of Public Health, September 2011
    Care plan agreement form between a client and case manager on the goals and objectives of care (Who, What, Where, How, When, How Often, Progress/Outcome/Date).
  • Face to Face, January 2010

    Code of Conduct policy for clients to reinforce value and importance of respectful behavior toward staff and other clients.

  • Matthew 25, January 2009

    Brief list of client responsibilities used by a Ryan White clinic in explaining what is expected of them, such as active engagement in the care plan, sharing of information with staff, and appropriate conduct.

  • Idaho Department of Health and Welfare, January 2009

    Form used to explain client rights and responsibilities. Developed by the Idaho Department of Health and Welfare.

  • Matthew 25, January 2009

    One page agreement for clients outlining their rights and responsibilities as clients of a clinic. Document discusses confidentiality, honest and open communication, managing health responsibly, and keeping the clinic informed about financial and lifestyle changes.

  • Truman Medical Center, January 2009
    Series of one-page surveys to assess client understanding of each of the following: medications, health maintenance, HIV and transmission, lab tests/health problems, information.
  • West County Health Centers, March 2013

    Form for clients explaining the maximum annual amount of costs patients will incur (annual payment cap) for services they receive from Ryan White providers.  Once this payment cap is reached in a given year, Ryan White providers will not charge any more for the rest of the year.

  • El Rio Community Health Center, January 2004

    One-pager poses question to client, "How Ready are You for the Challenge of Taking Your HIV Medications Everyday" followed by scale for patient to mark where they self-assess their readiness.

Toolkits

  • Linking to Care
    Philadelphia Office of HIV Planning, May 2014

    This is a brief assessment tool for counselors and testing staff to use with persons newly-diagnosed with HIV to assess their linkages to care in terms of health coverage, finances, housing, and social supports.

  • January 2012

    infoSIDA ofrece acceso a información actualizada en español sobre el tratamiento de la infección por el VIH/SIDA y ensayos clínicos desarrollados específicamente para las comunidades afectadas por dicha infección y para otras comunidades de atención de salud.

Manuals