Resource Library > Consumers/Patients > Patient Education

Topic: Patient Education

Ideally, patients are co-equal partners in their care. The Ryan White HIV/AIDS Program helps patients take on this responsibility by educating patients about the complexities of HIV/AIDS care and by training the clinic team to work with their patients in a collaborative manner.

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Guidelines and Manuals

Webinars and Training

Tools and Job Aids

  • HRSA HIV/AIDS Bureau
    June 2016

    Library of text messages developed by the UCARE4Life research study. Includes messages for multiple situations (general adherence, daily reminders, basic HIV health literacy, retention in care, appointment reminders, risk reduction). Messages are provided in English and in Spanish.

     

  • HRSA HIV/AIDS Bureau, JSI
    April 2016

    Brochures providing practical explanations of key concepts for Ryan White patients regarding getting health coverage, using coverage, and paying for care.

  • HRSA HIV/AIDS Bureau, JSI
    February 2016

    Two posters for care and service providers developed as part of the In It Together: National Health Literacy Project for Black MSM.

  • ACE TA Center
    December 2015

    This consumer guide will help newly enrolled clients get started using their health insurance benefits.

  • NASTAD
    November 2015

    Listing of pharmaceutical company Patient Assistance Programs (PAPs) with names, contact information, drugs covered and eligibility criteria.

  • ACE TA Center
    July 2015

    This resource guide is for anyone helping Ryan White HIV/AIDS Program (RWHAP) clients apply for health insurance, particularly RWHAP staff who are helping clients through the entire enrollment process. The guide lists the enrollment steps and has links to resources, tips, and tools to help enrollment assisters with each step.

  • AETC National Coordinating Resource Center
    July 2015

    Illustrates how improving patient self-management can help to reduce gaps along the HIV care continuum.

  • Philadelphia Office of HIV Planning
    May 2014

    This is a brief assessment tool for counselors and testing staff to use with persons newly-diagnosed with HIV to assess their linkages to care in terms of health coverage, finances, housing, and social supports.

  • West County Health Centers
    March 2013

    Form for clients explaining the maximum annual amount of costs patients will incur (annual payment cap) for services they receive from Ryan White providers.  Once this payment cap is reached in a given year, Ryan White providers will not charge any more for the rest of the year.

  • Oregon Health Authority
    October 2012

    Series of care plan forms to assess clients in terms of intake, assessment, and care. Forms include: intake, eligibility determination, residency verification, screening for care and psychological services, client rights and responsibilities, nursing assessment, and a care plan.

  • Iowa Department of Public Health
    September 2011

    Tool for clients to use in recording weekly goals as part of their overall care plan to outline goals and objectives for HIV/AIDS care.

  • Iowa Department of Public Health
    September 2011

    Care plan agreement form between a client and case manager on the goals and objectives of care (Who, What, Where, How, When, How Often, Progress/Outcome/Date).

  • Face to Face
    January 2010

    Code of Conduct policy for clients to reinforce value and importance of respectful behavior toward staff and other clients.

  • HRSA HIV/AIDS Bureau
    August 2009

    Building Blocks is a training compendium for agencies seeking to develop programs that utilize peers to help engage and retain other people living with HIV/AIDS in care.

  • HRSA HIV/AIDS Bureau
    August 2009

    Una herramienta para capacitar pares/peers con VIH para involucrar a las personas viviendo con VIH o SIDA a entrar o seguir con su cuidado médico

  • Matthew 25
    January 2009

    Brief list of client responsibilities used by a Ryan White clinic in explaining what is expected of them, such as active engagement in the care plan, sharing of information with staff, and appropriate conduct.

  • Idaho Department of Health and Welfare
    January 2009

    Form used to explain client rights and responsibilities. Developed by the Idaho Department of Health and Welfare.

  • Matthew 25
    January 2009

    One page agreement for clients outlining their rights and responsibilities as clients of a clinic. Document discusses confidentiality, honest and open communication, managing health responsibly, and keeping the clinic informed about financial and lifestyle changes.

  • January 2009

    Series of one-page surveys to assess client understanding of each of the following: medications, health maintenance, HIV and transmission, lab tests/health problems, information.

  • El Rio Community Health Center
    January 2004

    One-pager poses question to client, "How Ready are You for the Challenge of Taking Your HIV Medications Everyday" followed by scale for patient to mark where they self-assess their readiness.

Reports and Best Practices

Websites

  • New Mexico AETC and International Association of Providers of AIDS Care (IAPAC)
    January 2016
    AIDS InfoNet ofrece información confiable, no técnica sobre el tratamiento del VIH/SIDA en inglés, español y otros idiomas. La principal audiencia de los materiales de InfoNet incluye a personas viviendo con el VIH y sus cuidadores, especialmente enfermeras y otros proveedores de primera línea.
  • AIDS.GOV
    May 2015

    Enlace principal a recursos clave de sitios del gobierno federal de los EE.UU. en español relacionados con el VIH/SIDA. Incluye servicios de prevención, tratamiento y apoyo.

  • CDC
    May 2015

    Esta página incluye información básica sobre el VIH, hojas informativas, y afiches.

  • U.S. Department of Justice
    April 2015

    Information on federal anti-discrimination protections for people living with HIV, including the the Americans with Disabilities Act (ADA).

  • CDC
    March 2015

    High-impact HIV prevention interventionsbased upon scientifically proven, cost-effective, and scalable interventions directed to the most vulnerable populations in the geographic areas where HIV prevalence is highest.

  • AETC National Coordinating Resource Center
    January 2015

    Clinical education/training resources and patient education materials on a range of HIV clinical care and clinical management topics.

  • U.S. Department of Health and Human Services
    January 2015

    infoSIDA ofrece acceso a información actualizada en español sobre el tratamiento de la infección por el VIH/SIDA y ensayos clínicos desarrollados específicamente para las comunidades afectadas por dicha infección y para otras comunidades de atención de salud.

  • U.S. Department of Health and Human Services
    January 2015

    Portal for HIV/AIDS information from the U.S. federal government-from facts about HIV/AIDS, where to get services, policies and programs and more.

  • U.S. Department of Health and Human Services
    November 2014

    Information and tools for enrollment assisters, navigators and consumers who are enrolling and renewing health insurance marketplace coverage. 

  • U.S. Department of Health and Human Services
    August 2014

    AIDSinfo is the official home to all U.S. HIV-related treatment guidelines. The site also includes a HIV/AIDS health topics database and fact sheets on FDA-approved and investigational HIV/AIDS-related drugs, educational materials for consumers and providers, and a clinical trials database.

  • April 2013

    Website for consumers to learn about the approval process for drugs and drug devices as carried out by the federal agency, the Food and Drug Administration (FDA).