Topic: Consumers/Patients
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A core value of the Ryan White HIV/AIDS Program is engagement of consumers in all facets of the Ryan White HIV/AIDS Program. Consumers:- Serve as members and leaders of planning bodies.
- Participate in consumer advisory boards to provide feedback to clinics on services and their design.
- Reach out as peers to other persons living with HIV/AIDS to engage and retain them in care.
- Serve as volunteers and paid staff members in HIV/AIDS care agencies.
Looking for health insurance coverage? See our consumer enrollment resources.
See HIV care resources or specific populations.
Collections
Guidelines and Manuals
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U.S. Department of Health and Human ServicesMarch 2017
Federal guidelines for treatment, prevention and care of HIV disease and opportunistic infections.
Webinars and Training
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HRSA HIV/AIDS BureauMarch 2017
Results of a 2016 Technical Assistance Assessment Project reviewing perceived successes, key structural issues, abilities, challenges and technical assistance needs of Ryan White HIV/AIDS Program Part A Planning Councils/Planning Bodies.
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HRSA HIV/AIDS BureauNovember 2016
Slide presentations for workshop sessions held at the 2016 Ryan White Conference.
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Positively!: HIV Self-Management Videos
National Quality CenterJuly 2014This is a comprehensive set of HIV self-management videos, featuring testimonials, conversations, narrative, and animation to provide key messages about HIV and emphasize health literacy concepts.
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HRSA HIV/AIDS BureauOctober 2013
Orientation tutorial on the Ryan White HIV/AIDS Program.
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AltaMedOctober 2012
Sin Vergüenza es un drama de vanguardia que invita a la reflexión, y que usa su narrativa para abordar la vergüenza y el estigma asociados con el VIH dentro de la comunidad latina.
Sin Vergüenza is a thought provoking, cutting edge drama that uses storytelling to tackle shame and stigma associated with HIV within the Latino Community.
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HRSA HIV/AIDS BureauJuly 2012
Session for ADAP coordinators on ADAP intersections with patient assistance programs (PAPs), client access to PAPs, and NASTAD work to streamline the PAP eligibility and enrollment processes.
Tools and Job Aids
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HRSA HIV/AIDS Bureau, NASTADAugust 2016
The Common Patient Assistance Program (PAP) Application can be used to apply for any pharmaceutical assistance program (PAP) offered by pharmaceutical companies.
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HRSA HIV/AIDS Bureau, JSIApril 2016
Brochures providing practical explanations of key concepts for Ryan White patients regarding getting health coverage, using coverage, and paying for care.
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Online Resource Guide for Enrolling Ryan White HIV/AIDS Program Clients in Health Coverage
ACE TA CenterJuly 2015Resource guide for enrollment assisters, organized as a step-by-step process, to help Ryan White HIV/AIDS Program (RWHAP) clients enroll in and use health insurance.
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HRSA HIV/AIDS BureauJanuary 2011
Methods that involve persons living with HIV/AIDS (PLWHA) to help link other PLWHA into primary medical care and other needed services.
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HRSA HIV/AIDS BureauAugust 2009
Building Blocks is a training compendium for agencies seeking to develop programs that utilize peers to help engage and retain other people living with HIV/AIDS in care.
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Componentes Esenciales para la Capacitación y Éxito de los Trabajadores Pares (Peers)
HRSA HIV/AIDS BureauAugust 2009Una herramienta para capacitar pares/peers con VIH para involucrar a las personas viviendo con VIH o SIDA a entrar o seguir con su cuidado médico
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HRSA HIV/AIDS BureauJanuary 2008
Part A planning council member, and Part A grantee, roles and responsibilities.
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New York State Department of Health AIDS InstituteAugust 2006
Guide on ways an organization can involve consumers in quality, including: representation on the Board of Directors; establishment of an HIV-specific Consumer Advisory Board (CAB); consumer representation on an existing CAB.
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HRSA HIV/AIDS BureauJanuary 2005
Materials to help programs develop strategies to employ Ryan White consumers/people living with HIV/AIDS.
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HRSA HIV/AIDS BureauJanuary 2005
Workbook on setting up and operating a consumer advisory board (CAB), with attention to CAB operations for Part D (Title IV) programs targeting women, infants, children, and youth. Sections cover:
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HRSA HIV/AIDS BureauMarch 2003
This document has outdated information on HIV/AIDS and the structure of the Ryan White HIV/AIDS Program. However, training resources on participating in a planning body are still relevant.
Reports and Best Practices
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ACE TA CenterJuly 2014
An overview of important topics for enrollment assisters who are new to working with PLWH.
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HRSA HIV/AIDS BureauMarch 2014
Compilation of SPNS grantee experiences with peer models and how they can be used in various care settings.
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Moving on Positively: A Guide for Youth, Caregivers and Providers
Next Step and MassCAREMay 2012Guidebook for multiple audiences that outlines steps (called Solutions in the guide) for transitioning youth from pediatric care to adult services.
Websites
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HRSA HIV/AIDS BureauApril 2017
HRSA/HAB administers The Ryan White HIV/AIDS Program, the largest Federal program focused exclusively on HIV/AIDS care.
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Center for Engaging Black MSM across the Care ContinuumJanuary 2017
His Health is a website training site to educate providers on the delivery of HIV health care services for Black men who have sex with men (MSM) to enhance engagement and retention in care.
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JSIJanuary 2017
In It Together: National Health Literacy Project for Black MSM. In It Together is a health literacy training initiative for health care professionals serving black/African American Men who have Sex with Men (MSM).
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Center for Engaging Black MSM across the Care ContinuumJanuary 2017
Well Versed is an online resource to enhance care interactions experienced by Black MSM. The site presents information and videos for health care providers and patients to help them at each stage of a care interaction.
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SAMHSAOctober 2016
SAMHSA is the agency within the U.S. Department of Health and Human Services that leads public health efforts to advance the behavioral health of the nation.
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AETC National Coordinating Resource CenterJuly 2016
Collaborative of AIDS Education and Training Centers (AETCs) to enhance HIV care across the U.S.-Mexico border.
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HRSA HIV/AIDS BureauOctober 2015This project traces the history of the Ryan White HIV/AIDS Program, the largest federal program focused on HIV/AIDS care, featuring a timeline, the legislation, video and audio insights and more.
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CDCMay 2015
Esta página incluye información básica sobre el VIH, hojas informativas, y afiches.
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HIV.GOVMay 2015
Enlace principal a recursos clave de sitios del gobierno federal de los EE.UU. en español relacionados con el VIH/SIDA. Incluye servicios de prevención, tratamiento y apoyo.
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U.S. Department of JusticeApril 2015
Information on federal anti-discrimination protections for people living with HIV, including the the Americans with Disabilities Act (ADA).
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U.S. Department of Health and Human ServicesJanuary 2015
Portal for HIV/AIDS information from the U.S. federal government-from facts about HIV/AIDS, where to get services, policies and programs and more.
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U.S. Department of Health and Human ServicesOctober 2014
Federal resources on discrimination and health care privacy protections.
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U.S. Department of Health and Human ServicesAugust 2014
AIDSinfo is the official home to all U.S. HIV-related treatment guidelines. The site also includes a HIV/AIDS health topics database and fact sheets on FDA-approved and investigational HIV/AIDS-related drugs, educational materials for consumers and providers, and a clinical trials database.
