Supporting HIV care through education and innovation

Topic: Consumers/Patients

A core value of the Ryan White HIV/AIDS Program is engagement of consumers in all facets of the Ryan White HIV/AIDS Program. Consumers:

  • Serve as members and leaders of planning bodies.
  • Participate in consumer advisory boards to provide feedback to clinics on services and their design.
  • Reach out as peers to  other persons living with HIV/AIDS to engage and retain them in care.
  • Serve as volunteers and paid staff members in HIV/AIDS care agencies.

Collections

  • Help with setting up a CAB that works for members and for clinics.
  • Ideas for involving consumers in all aspects of Ryan White programs.
  • Tools and approaches to help patients understand the "whys" and "hows" of HIV and HIV care.
  • A rich collection of tools and best practices for setting up and managing a peer program.

Websites

  • U.S. Department of Health and Human Services
    July 2013

    AIDSinfo is the official home to all U.S. HIV-related treatment guidelines. The site also includes a HIV/AIDS health topics database and fact sheets on FDA-approved and investigational HIV/AIDS-related drugs, educational materials for consumers and providers, and a clinical trials database.

Toolkits

Training resources

  • HRSA HIV/AIDS Bureau
    January 2008

    Informs Part A planning council members about the roles and responsibilities of planning councils and Part A grantees. Includes an overview of the Ryan White HIV/AIDS Program, and covers how Part A works. Addresses planning council structure and bylaws, TA and the Part A award process.

  • Mosaica
    March 2003

    Provides planning councils and consortia members with the information necessary to participate in Ryan White planning and implementation activities, with special emphasis on people living with HIV/AIDS (PLWHA).

Reports

Webcasts

Slide sets

Best practices

  • Next Step and MassCARE, May 2012

    Guidebook for multiple audiences that outlines steps (called Solutions in the guide) for transitioning youth from pediatric care to adult services. The guide is color-coded for key groups:

    • Youth (orange)
    • Their caregivers (blue)
    • Their providers (green)

Tools

  • Iowa Department of Public Health, September 2011
    Care plan agreement form between a client and case manager on the goals and objectives of care (Who, What, Where, How, When, How Often, Progress/Outcome/Date).