A core value of the Ryan White HIV/AIDS Program is engagement of consumers in all facets of the Ryan White HIV/AIDS Program. Consumers:
- Serve as members and leaders of planning bodies.
- Participate in consumer advisory boards to provide feedback to clinics on services and their design.
- Reach out as peers to other persons living with HIV/AIDS to engage and retain them in care.
- Serve as volunteers and paid staff members in HIV/AIDS care agencies.
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Guidelines and Manuals
HRSA HIV/AIDS BureauJanuary 2005
Materials to help programs develop strategies to employ Ryan White consumers/people living with HIV/AIDS.
Webinars and Training
Center for Engaging Black MSM across the Care Continuum, NASTADDecember 2014
The goal of the Center for Engaging Black MSM Across the Care Continuum (CEBACC) is to identify, compile, and disseminate best practices and effective models for HIV clinical care and treatment across the HIV care continuum in order to increase the capacity, quality, and eff
National Quality Center and Baltimore City Health Department (Part A Program)July 2014
This is a comprehensive set of HIV self-management videos, featuring testimonials, conversations, narrative, and animation to provide key messages about HIV and emphasize health literacy concepts.
HRSA HIV/AIDS BureauOctober 2013
Orientation tutorial on the Ryan White HIV/AIDS Program.
HRSA HIV/AIDS BureauMay 2013
This Webinar was the last of a three-part series synthesizing some of the successful practices in engaging hard-to-reach populations from SPNS population-specific initiatives.
HRSA HIV/AIDS BureauNovember 2012
Presentations from the 2012 Ryan White Grantee meeting.
HRSA HIV/AIDS BureauJuly 2012
Session for ADAP coordinators on ADAP intersections with patient assistance programs (PAPs), client access to PAPs, and NASTAD work to streamline the PAP eligibility and enrollment processes.
Rutgers Francois-Xavier Bagnoud CenterFebruary 2008
Multimedia training for healthcare providers to prepare them to support the involvement of consumers in research.
HRSA HIV/AIDS BureauJanuary 2008
Part A planning council member, and Part A grantee, roles and responsibilities.
Provides planning councils and consortia members with the information necessary to participate in Ryan White planning and implementation activities, with special emphasis on people living with HIV/AIDS (PLWHA).
Tools and Job Aids
TARGET CenterDecember 2014
Affordable Care Act enrollment resources specific to consumers living with HIV/AIDS.
Harris County Public Health and Environmental ServicesOctober 2014
Tool and policy for Ryan White grantees and providers to document that they made “every reasonable effort” to enroll potentially eligible uninsured Ryan White program clients in the Health Insurance Marketplace.
ACE TA CenterJuly 2014
This resource guide is for anyone helping Ryan White HIV/AIDS Program (RWHAP) clients apply for health insurance, particularly RWHAP staff who are helping clients through the entire enrollment process. It lists the enrollment steps and has links to resources, tips, and tools to help enrollment assisters with each step.
Colorado Department of Public Health and EnvironmentMay 2014
Form for staff and clients to use in determining if they experienced a qualifying life event that would enable them to enroll in Affordable Care Act coverage after the March 31, 2014 end date for the 2014 open enrollment season.
Iowa Department of Public HealthSeptember 2011
Care plan agreement form between a client and case manager on the goals and objectives of care (Who, What, Where, How, When, How Often, Progress/Outcome/Date).
HRSA HIV/AIDS BureauJanuary 2011
Methods that involve persons living with HIV/AIDS (PLWHA) to help link other PLWHA into primary medical care and other needed services.
HRSA HIV/AIDS BureauAugust 2009
Building Blocks is a training compendium for agencies seeking to develop programs that utilize peers to help engage and retain other people living with HIV/AIDS in care. Training materials are for agencies with companion materials to train peers.
HRSA HIV/AIDS BureauJanuary 2005
Workbook on setting up and operating a consumer advisory board (CAB), with attention to CAB operations for Part D (Title IV) programs targeting women, infants, children, and youth. Sections cover:
Reports and Best Practices
TARGET CenterJuly 2014
Suggestions for Ryan White consumers to get ready for the Affordable Care Act (ACA), which will expand protections and may impact services and where they get care.
ACE TA CenterJuly 2014
An overview of important topics for enrollment assisters who are new to working with PLWH.
HRSA HIV/AIDS BureauMarch 2014
Compilation of SPNS grantee experiences with peer models and how they can be used in various care settings.
U.S. Department of Health and Human ServicesJanuary 2014
Series of consumer fact sheets on using Affordable Care Act health coverage in a responsible manner.
Consumers UnionJune 2013
Brochures for consumers explaining how premium tax credits work.
Next Step and MassCAREMay 2012
Guidebook for multiple audiences that outlines steps (called Solutions in the guide) for transitioning youth from pediatric care to adult services. The guide is color-coded for key groups:
- Youth (orange)
- Their caregivers (blue)
- Their providers (green)
HRSA HIV/AIDS BureauApril 2015This project traces the history of the Ryan White HIV/AIDS Program, the largest federal program focused on HIV/AIDS care, featuring a timeline, the legislation, video and audio insights and more.
U.S. Department of JusticeApril 2015
Information on federal anti-discrimination protections for people living with HIV, including the the Americans with Disabilities Act (ADA).
U.S. Department of Health and Human ServicesNovember 2014
Information and tools for enrollment assisters, navigators and consumers who are enrolling and renewing health insurance marketplace coverage.
TARGET CenterNovember 2014
Non-federal websites with tailored resources on the Affordable Act Act and HIV/AIDS.
U.S. Department of Health and Human ServicesOctober 2014
Federal resources on discrimination and health care privacy protections.
U.S. Department of Health and Human ServicesAugust 2014
AIDSinfo is the official home to all U.S. HIV-related treatment guidelines. The site also includes a HIV/AIDS health topics database and fact sheets on FDA-approved and investigational HIV/AIDS-related drugs, educational materials for consumers and providers, and a clinical trials database.