Supporting HIV care through education and innovation

Topic: Consumer Involvement

Consumers (persons living with HIV/AIDS and their families) are involved in multiple Ryan White activities. Consumer involvement in planning councils and other planning bodies is to ensure that affected communities are involved in determining needs and how best to address them. Consumer participation in Consumer Advisory Boards (CABs) is to ensure that clinics hear from and involve patients in care design and delivery.

Manuals

  • HRSA HIV/AIDS Bureau
    June 2013

    Manual for Ryan White Part A grantees and planning bodies on administration of their programs. Update reflects Ryan White legislative and program requirements through 2013.

  • HRSA HIV/AIDS Bureau
    May 2013

    Manual for Part B grantees and planning bodies outlines legislation and policies along with technical guidance on carrying out specific requirements of grantees.

Training resources

  • HRSA HIV/AIDS Bureau
    January 2008

    Informs Part A planning council members about the roles and responsibilities of planning councils and Part A grantees. Includes an overview of the Ryan White HIV/AIDS Program, and covers how Part A works. Addresses planning council structure and bylaws, TA and the Part A award process.

  • Mosaica
    March 2003

    Provides planning councils and consortia members with the information necessary to participate in Ryan White planning and implementation activities, with special emphasis on people living with HIV/AIDS (PLWHA).

  • HRSA HIV/AIDS Bureau
    January 2001

    Guide to help consumers participate in Ryan White planning, with sections covering group dynamics, self-assessment worksheets, ideas about effective communications, and details about Ryan White planning.

Toolkits

Videos

  • HRSA HIV/AIDS Bureau
    November 1996

    You Make the Difference is an orientation to Ryan White Planning Councils for prospective new members. The video describes the Planning Council's role in assessing needs and making decisions about funding of HIV/AIDS services for metropolitan areas with the highest number of HIV/AIDS cases.

Websites

Slide sets

Tools

Best practices

  • Next Step and MassCARE, May 2012

    Guidebook for multiple audiences that outlines steps (called Solutions in the guide) for transitioning youth from pediatric care to adult services. The guide is color-coded for key groups:

    • Youth (orange)
    • Their caregivers (blue)
    • Their providers (green)

Tools

  • AIDS Arms, January 2008, Inc., January 2008

    Mission statement and bylaws for a community advisory board (CAB), developed by AIDS Arms in Dallas, Texas.

  • Massachusetts Department of Public Health, January 2011, HIV/AIDS Bureau, January 2011

    Resources for the Massachusetts Statewide Consumer Advisory Board (CAB), comprised of people living with HIV/AIDS, including a handbook on CAB operations, an application for membership, and a guide on meeting mechanics.

Toolkits

Training resources

Manuals

Best practices

Training resources