Topic: Consumer Involvement
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Consumers (persons living with HIV/AIDS and their families) are involved in multiple Ryan White activities. Consumer involvement in planning councils and other planning bodies is to ensure that affected communities are involved in determining needs and how best to address them. Consumer participation in Consumer Advisory Boards (CABs) is to ensure that clinics hear from and involve patients in care design and delivery.Webinars and Training
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HRSA HIV/AIDS BureauMarch 2017
Results of a 2016 Technical Assistance Assessment Project reviewing perceived successes, key structural issues, abilities, challenges and technical assistance needs of Ryan White HIV/AIDS Program Part A Planning Councils/Planning Bodies.
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Boston Public Health CommissionMay 2015
Video to recruit new members for the Ryan White Part A Planning Council, featuring consumer voices.
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National Quality CenterJuly 2014
This is a comprehensive set of HIV self-management videos, featuring testimonials, conversations, narrative, and animation to provide key messages about HIV and emphasize health literacy concepts.
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Rutgers Francois-Xavier Bagnoud CenterFebruary 2008
Multimedia training for healthcare providers to prepare them to support the involvement of consumers in research.
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National Quality CenterAugust 2006
Facilitator guide to train consumers to understand performance data and empower them to partner with their health care providers. Contains Facilitator Guide and Handouts for Consumer Workshop; Consumer Workshop Brochure; and Literature Review.
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HRSA HIV/AIDS BureauNovember 1996
An orientation to Ryan White Planning Councils for prospective new members.
Tools and Job Aids
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TARGET CenterFebruary 2017
Tools and tips to help with planning conference workshops, poster sessions, webcasts, teleconferences, and videos, including making resources 508 accessibility compliant.
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HRSA HIV/AIDS BureauAugust 2009
Building Blocks is a training compendium for agencies seeking to develop programs that utilize peers to help engage and retain other people living with HIV/AIDS in care.
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HRSA HIV/AIDS BureauAugust 2009
Una herramienta para capacitar pares/peers con VIH para involucrar a las personas viviendo con VIH o SIDA a entrar o seguir con su cuidado médico
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HRSA HIV/AIDS BureauApril 2009
Toolkit to assist trainers and program directors in planning a peer training program for HIV-positive peers who work to engage and retain people living with HIV/AIDS in health care.
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HRSA HIV/AIDS BureauJanuary 2008
Part A planning council member, and Part A grantee, roles and responsibilities.
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AIDS Arms, Inc.January 2008
Mission statement and bylaws for a community advisory board (CAB), developed by AIDS Arms in Dallas, Texas.
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HRSA HIV/AIDS BureauSeptember 2007
Sample protocol outlines steps and activities for the conduct of a town hall meeting as part of the community needs assessment ot strategic planning process.
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HRSA HIV/AIDS BureauAugust 2007
Tools for use in a program whereby peer advocates work in a multidisciplinary team to engage people living with HIV/AIDS in care. Part I (Supervisor’s Guide) and Part II (Peer Advocate Toolkit).
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New York State Department of Health AIDS InstituteAugust 2006
Guide on ways an organization can involve consumers in quality, including: representation on the Board of Directors; establishment of an HIV-specific Consumer Advisory Board (CAB); consumer representation on an existing CAB.
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HRSA HIV/AIDS BureauJanuary 2005
Materials to help programs develop strategies to employ Ryan White consumers/people living with HIV/AIDS.
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HRSA HIV/AIDS BureauJanuary 2005
Workbook on setting up and operating a consumer advisory board (CAB), with attention to CAB operations for Part D (Title IV) programs targeting women, infants, children, and youth. Sections cover:
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HRSA HIV/AIDS BureauJanuary 2004
Provides an overview of recruitment and retention strategies which planning councils and consortia can use to support membership. Includes worksheets to assess planning body operations related to member dissatisfaction and to the use of recruitment, training and member engagement strategies.
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HRSA HIV/AIDS BureauMarch 2003
This document has outdated information on HIV/AIDS and the structure of the Ryan White HIV/AIDS Program. However, training resources on participating in a planning body are still relevant.
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HRSA HIV/AIDS BureauJanuary 2003
Este documento inicial explica lo que hace el programa de VIH/SIDA de Ryan White. También describe lo que los consejos de planificación hacen para tomar decisiones para patrocinar y prestar servicios de VIH/SIDA de Ryan White en sus zonas geográficas.
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HRSA HIV/AIDS BureauJanuary 2001
Guide to help consumers participate in Ryan White planning, with sections covering group dynamics, self-assessment worksheets, ideas about effective communications, and details about Ryan White planning.
Reports and Best Practices
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Philadelphia Office of HIV PlanningApril 2015
Analysis of HIV prevention and care engagement focus groups with YMSM in Philadelphia.
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Next Step and MassCAREMay 2012
Guidebook for multiple audiences that outlines steps (called Solutions in the guide) for transitioning youth from pediatric care to adult services.
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HRSA HIV/AIDS BureauJanuary 2006
Estos cuadernos describen la manera de asistir a conectar personas que viven con VIH/SIDA con el sistema médico.
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HRSA HIV/AIDS BureauFebruary 2004
As part of an ongoing effort to seek the input from diverse communities, HAB convened a series of four one-day meetings with representatives of several racial and ethnic minority groups during January and February 2004.
Websites
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HIV.GOVMay 2015
Enlace principal a recursos clave de sitios del gobierno federal de los EE.UU. en español relacionados con el VIH/SIDA. Incluye servicios de prevención, tratamiento y apoyo.
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U.S. Department of Health and Human ServicesJanuary 2015
Portal for HIV/AIDS information from the U.S. federal government-from facts about HIV/AIDS, where to get services, policies and programs and more.
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April 2013
Website for consumers to learn about the approval process for drugs and drug devices as carried out by the federal agency, the Food and Drug Administration (FDA).